Aug 20, 2019
Courtney Waller is the co-Founder of Timothy Syndrome Alliance, and mom to a 5 year old daughter with the condition.
She has been a legislative advocate for the rare disease community for the past five years. Primarily working on legislation by state. She is the founder and principal of Policy Served Rare, a patient centered think tank focusing on policy that focuses on health and mental health care for the rare disease community.
Twitter: @Timothy Syndrome
Facebook: Policy Served Rare @policyservedrare